DAVID PALMER

DIRECTOR

​My nephew had Prader Willi Syndrome and lived with my family for nearly two years aged 17/18. He went into residential care at the age of 18 years old. He died 3 month before his 21st birthday. This was in January 1997. Much has changed and evolved in the PWS world over the near 20 years since then....
Following Vincent’s demise, I become a member of the Trustee Board of the PWSA (UK) where I served two years. I was one of three people that were instrumental in the formation of New Directions which opened in September 1998. This was to offer residential options to adults with PWS. At this time I organised some holidays for people with PWS, spoke with parents and professionals including Margaret Gellatly the dietician associated to the PWSA.
The holidays were a great source of information and learning for me, by the end of the week - whilst I was doing the washing up - they would sit at the table talking about their lives and aspirations. I left the company in December 2015. 

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